![Pinterest](https://pinterest.com/pin/create/button/?url=https://uknews.evprotec.com/our-kids-face-a-death-sentence-if-we-cant-find-2400-a-month-to-keep-them-alive/&media=https://uknews.evprotec.com/wp-content/uploads/2023/07/newspress-collage-22916136-1688728748916.jpg&description=HELD TO RANSOM Our kids face a death sentence if we can't find £2,400 a month to keep them alive DOZENS of seriously ill children in the UK are facing "a death sentence" as their life-saving medication is withdrawn from the market. Since cannabis-based drugs were made legal in the UK to treat epilepsy, around 100 children are understood to have obtained a prescription. 9 Emma Appleby with daughter Teagan, who has a rare chromosomal disorder Credit: Emma Appleby 9 Little Alfie Hughes, who can suffer up to 120 seizures a day Credit: Instagram/@matt_hughes_79 However, their families have had to fund it out of their own savings. It's been worth it though. After years of not responding to any other medicines, these kids allegedly had their lives transformed. Some went from having hundreds of seizures every month, each having the potential to kill them, to almost none, their parents say. Three youngsters are even said to be in complete remission thanks to the oil. But red tape has hindered families from accessing UK manufactured products. Instead, they have had to rely on a medication imported from Israel, called Celixir20. However, manufacturer Breath of Life Pharmaceuticals has shut down for good - leaving parents in a desperate situation. The alternatives that are available come with a huge increase in cost. Mums and dads who previously saw their youngsters thrive now face forking out thousands of pounds more a month or switching to a less effective replacement and watching their child slip away. Emma Appleby, mum to 13-year-old Teagan, who has a rare chromosomal disorder which can cause 300 seizures a day, said: "Celxir20 isn't a miracle cure, but it is absolutely the best thing she's tried. "On it, she's been able to get her life back - horse riding, surfing, laughing, and joining in like other kids. "But now we've had to switch to a new combination which is less effective. "She can no longer walk. She's not able to pick up her fork and feed herself anymore. "It's on){kind=link}
DOZENS of seriously ill children in the UK are facing “a death sentence” as their life-saving medication is withdrawn from the market.
Since cannabis-based drugs were made legal in the UK to treat epilepsy, around 100 children are understood to have obtained a prescription.
However, their families have had to fund it out of their own savings.
It’s been worth it though. After years of not responding to any other medicines, these kids allegedly had their lives transformed.
Some went from having hundreds of seizures every month, each having the potential to kill them, to almost none, their parents say.