SHE’S not yet two months old, but already little Rui Caston has shown her brave, fighting spirit.
Just days after she was born her parents Tim and Amber’s lives were turned upside down.
A routine check with the midwife uncovered a heart murmur, and further tests revealed Rui was suffering a major heart defect – complex congenital heart disease.
Doctors found two holes in her heart, and the two main arteries carrying blood to her heart were in the wrong position – a condition called transposition of the great arteries or TGA.
Medics told the couple their daughter needed an operation within the first month of her life, otherwise it might be too late.