29 August, Thursday, 2024
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Parents to beg judges to let baby with same condition as Charlie Gard stay alive

Indi Gregory was born with mitochondrial disease, a rare genetic condition which also affected young Charlie Gard, with her parents now leading a legal battle to get their daughter new treatment

The parents of a six-month-old baby born with a life-threatening illness that has no cure will plead with a High Court judge today for new treatment – despite doctors saying it would be kinder to let her die.

Indi Gregory was born with mitochondrial disease, a genetic condition which means her cells are not able to produce enough energy to support her body. It is the same condition suffered by Charlie Gard. who died a week before his first birthday while his parents fought in court to keep their son alive in hospital. His heart-wrenching case sparked widespread public attention, and was movingly re-enacted in BBC1 drama Best Interests earlier this year.

On Friday, Indi’s parents Claire Staniforth, 35, and Dean Gregory, 37 – who have spent months at their daughter’s bedside at the Queens Medical Centre in Nottingham – will appear at a court hearing to appeal the hospital’s decision not to provide a new round of life-sustaining treatment. Nottingham University Hospitals NHS Trust have argued it is not in her ‘best interests’ to be given the treatment, as it could cause her condition to deteriorate, but her parents say she is a happy baby who ‘deserves a chance at life’.

In an interview with the Daily Mail, Dean said: “Indi is a strong little girl and a real fighter. She deserves a chance at life. The hospital wants to take this away and we are beyond horrified. She just needs time to recover so we can work out a plan to care for her at home. We know she will never be the same as other children, because she has several disabilities. But it breaks our hearts to think that doctors don’t want to give her that chance at life.”

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